The following
is a list NOT recognized
by the medical profession as being connected with MM. This is
a long page
but well worth reading. If you are not up to it, print this
page out, so
as to discuss it with you Physician.
This list has
been complied by various other Meniere's
Patients *privacy protected, only initials used. If you would
like further
information on any list below, I will be happy to contact the author
for you.
*New
Symptom* The right side of
my
face is in pain.. mostly from the middle part of my forehead across to
my temple
then from my temple down to my right ear, which of course, is full of
pressure
but what else is new, my right ear is the worst one... the pain is
constant, it
also feels like it burns, kind of.. I know I am not making sense... if
I touch
any of the areas describe, it hurts worse.. it started out I thought
like the
typical headache I get with a MM flare up, which started this morning,
head
swimmy, knowing I was headed for a spin... took prince valium and laid
down for
the day, pretty much... then the headache started and I noticed it was
more
pronounced on the right side.. then I noticed that my forehead
was in
pain.. a new one for me.. (CS)
I
sent a frantic email to (KJ) and her response
was... When our MM acts up, the 8th cranial nerve gets irritated, and
sometimes
the 5th nerve (facial) can get irritated too since it's in the same
nerve
bundle. So the result is not only MM but also
facial neuralgia (nerve pain).
It gets worse if you touch it or lay on that side, even an ice pack can
be irritating because of its weight. I also heard
from another woman
who also has this problem, she on the other hand had it before being
diagnosed
with MM. The MM has aggravated the condition for her.
- experience
blurred vision, double
vision, headaches, dizziness, ear pain, tinnitus, ear pressure, hearing
loss, brain fog, balance problems, light sensitiveness (especially in
fluorescent lighting), lightheadedness to the point of feeling like I'm
going to black out, noise sensitive, nausea, vomiting, fatigued, neck
pain, clumsiness, groping for words, cognitive problems, perception
problems, depression.
(S.O.)
- Constant
Lightheadedness
Nystagmus
Vision problems including sensitivity to light
Nausea
Fatigue
Hyperacusis
Earaches
Cognitive disabilities (brain fog)
Anxiety disorders (panicky feelings, avoidance behavior, I battle
agoraphobia)
Periods of Depression
Headaches
Stiff neck/tense shoulders
Also important are the effects on friends and family since I can't do
all
that I used to do. (D.Z.)
- Sudden and severe
ear pain, like someone is poking a knife in it, is
something the ENT didn't talk about. I've only had it a
couple of times, but golly!
Talk about pain . . .The ENT
also hasn't mentioned the migraine/MM
connection...I have a good ENT, too, who recognizes
brain fog as a symptom, which I know to
be rare. He also recognizes emotional
symptoms when in "active" mode, like being more easily upset and/or
depressed. (CK)
- Doctors
didn't tell me:
That I would lose my sense of direction in big stores, sometimes
even driving in familiar places.
That when I lost much of the hearing on one ear, that I wouldn't be
able to tell from which direction a sound
came from, whether it be
a fire siren when I'm driving, a bird singing. or a person calling me.
That fumes from certain chemicals could set off an episode.
That sleep is sometimes impossible due to the tinnitus.
That some people will tend to ignore you when you don't hear them
and even after you explain, they just can't be bothered with the extra
effort to accommodate the HOH person.(In other words no attempt to give
psychological help or referral..or even the name of another Mm patient
who is willing to be a mentor). I know that is what we do here for
others and ourselves, but there are many without this support we
MMers have created for ourselves)
That most of what I learn about my own MM situation has to be by
trial and error because they don't really know what will be a trigger
for a given individual.
That I stood a good chance of becoming depressed.
That to get out of the MM depression takes a great deal of
determination and self education through talking with others and
visiting sites of fellow Menerians. (I feel so sorry for
those who
remain depressed just because they do not have the $ for a computer,
or the education to know these sites are available.)
About the websites that are from medical professionals to share what
information they have about MM in general (Dr. Shea's site, or House
Ear Clinic etc...), nor do they give any handouts about organizations
like VEDA which we can join.
That there are a few books available (as from VEDA) for purchase
that can help educate a person newly diagnosed with MM or a related
disease.
How little research is being done for patients with inner ear
problems. (CG)
- Constant
headaches
Constant mild dizziness (with periods of intense vertigo and nausea)
Constantly tired
Vision problems
Space out for a few seconds
Stiff/very sore neck. The more my neck is stiff and sore, the more
dizzy I feel.
Brain fog /forgetfulness. VERY COMMON
Tinnitus (various ear noises and sounds) This is considered pretty
normal with MM
Deafness ( one of the true MM symptoms)
Nystagmus (eyes jerking from side of MM and back again).
Hearing things: phones ringing, door chimes, people talking that aren't
there.
Depression
Lifestyle changes
NOT having an understanding
Allergies
Facial/Ear numbness
Hyperventalation, during sever vertigo attacks
Acute anxiety (panic attack) during sever vertigo attacks
Loud noise
Muscle tics
Rocking Boat (Mal de Barquement)
Barometric pressure variations (SH)
- As
a side note: Recently we have noticed that quite a few fellow
sufferers also have many different forms of sleep disorders.
I would also like to add, allergies, asthma and immune related problems
are very common. A woman's monthly cycle also seems to have
an effect on MM
Changes in Meniere's Disease Responses as a Function
of the Menstrual Cycle
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